Jonathan loves the flat at Jalan Batu. Ever since he was young, we always brought him there to spend time with his grandparents (daddy's) and H will bring him up and down team common corridor staircase.
Many years have passed and it's still his favourite place.
He's always wanted to go there. But because of his vomiting issues we always avoid taxi rides.
But a few days before CNY, he asked us to bring him there and so we did. Thankfully our return home was OK and he didn't throw up. Then on the first day of CNY, he woke up at 6am! thinking we will be bringing him there to bai nian. But this year, my Mil is staying with my sister-in-law so the house is quite. He kept asking to go and so on the 3rd day of CNY, we brought him there again.
Taxi rides there will always be filled with excitement and only daddy can carry him in the cab to calm him down LOL.
Here are some photos to enjoy. Hope you all had a great CNY celebrations. Wishing you all a great year ahead!
First trip back before CNY
2nd trip back on 3rd day of CNY. Wanted to have breakfast at Macs or KFC kallang but was too crowded. So we walked back to Blk 6 and had our meal at the hawker center.
Jonathan officially turns 18 today. Born on Friday, 6 February 1997.
I learned that the date and day in 2015 is exactly the same as in 1997.
So this literally brings me back to the day when the trauma birth
Fast forward to 2015, I'm thankful to Daddy God for the
progress that Jonathan has made. From an intelligent young boy to now, a
more intelligent young man.
Yesterday, caregivers from Starpal came with an ice cream cake for Jonathan. And the surprise we got was a special guest : Dr Chong! SereneW didn't tell me. Wanted to give us a surprise and we trully were! Well...I was :)
I'm thankful to God for this great team. We had lunch and good chat (mostly chatters from me hahaha). But it was a relaxed atmosphere and Jonathan did well too. Thank you Lord, continue to bless this special team with strength and wisdom.
Dr Chong, as usual, was the joker, asking Jonathan if he wanted home schooling (to which Jonathan kept staring at him), followed by asking Jonathan if he wanted to meet girls since he's turning 18. haha. Of course Jonathan said no. Only mommy is enough. haha! Thanks Jonathan :)
While chatting with Dr Chong today, he asked me when did I quit my
job to become a full time caregiver. I said "since Jonathan was born".
Now as I think
about it, I tell myself "wow...18 years". It's been a long time. What
have I done? But to see Jonathan as he is today, there is a sense of
"achievement". I pray for more good things to come for him.
you Lord...we will continue to walk in faith, full of your grace and
wisdom for Jonathan, to be able to speak more words other than "no!" and
to put on his shoes and walk. For we look not at what was past but to
know that the finished work of Jesus at the cross has given us victory
over every obstacle, sickness and diseases. We look forward to
restoration, we look forward to joy and we look forward to greater
Thank you especially to both of our (H's & my) family
members and also friends for your constant encouragement and support.
Jonathan knows he is loved by everyone near and far. We love you all
Here are some pictures we took today:
Thanks for visiting. God bless everyone you richly!
I acquired a new machine last year. It's a mug press! Something that Ihave always wanted for a long time.
So if you or your friends would love to have a personalized mug like this (picture below):
Just before Christmas, H's friend decided to print personalized mugs for his staff of only 8. I thought it was a great idea! So if you have any staff under your department, you can consider as gifts. Don't have to wait till Christmas!
Do send me an EMAIL. Price per printed mug is $15. Comes with a box too. If you order more, then price will be lesser. Just let me know quantity. All designs can be full color.
I'm trying to prolong Jonathan's current Convaid buggy. But after seeing this photo (below) again and again, it's really time to get a new one.
This is the 14inch cruiser we bought a few years back. I think Jonathan started growing taller in 2014. A sudden surge in height.
The only drawback about getting a bigger cruiser (16 inch) is that it may be too big for the taxi car boot. I met a friend today and she told me that the day care her son goes to, has some kids who are already using the 16 inch buggy and most of them don't go out anymore because the buggy is big and can't fit into the car boot.
We're still debating. There are other buggies to reconsider, like the Metro. But this is a buggy with canvas mesh seat and I don't know how long it will last.
So...current buggy is getting small and the big buggy also must consider. But it is inevitable that we have to get the bigger buggy soon.
Anyone out there willing to buy us a MPV/SUV/van so that we can wheel the whole buggy into the vehicle and not take taxi as carrying him in and out of the cab is becoming difficult.
On November 3rd evening, Jonathan started showing signs of unwell again. The vomiting started at lightly at 8pm. At 9, we brought him to the GP and thought of giving him the jab. But I remembered the last one he had (Maxilon or something) really made him hyper and he couldn't sleep properly. So doctor said just stick to suppositories.
By 10pm, the vomting became worse. And he continued through the whole night. On any other occasion when he is unwell, he would normally stop retching around
4am. But that night on the 4th, he was still doing it right up to 7am. Although not frequently but mostly on the
hour or two. Vomit contents mostly dark brown.
We were contemplating
to bring him to KK but suddenly remembered Star Pals and their after
office hours on call. Spoke to the Doctor, who advised me to stop all feeds, even medication. He explained that Jonathan would not be
dehydrated even without water for one night.
Doctor arrived within the half hour, checked Jonathan and decided to give him a jab. The injection worked and immediately the retching stopped. I was told that the medicine for the jab was more to control the brain. Previous injections at the GP were more for the intestines, to stop the tummy from churning.
Perhaps this is the reason why most of the time, even after receiving the jab from the GP, he would still be retching. But I was glad that Jonathan finally stopped that morning.
And finally, both of us were able to have a good deep sleep for at least another hour.
Doctor further dispensed 2 other medication for Jonathan which we had to pick up from the local pharmacy.
Thank God for Star Pals! We were just introduced to this program by Jonathan's neurologist who felt that this service will be beneficial for us. And we only had one meeting with Nurse Serene. I must say God really planned it all for us.
Dr Chong is a very gentle doctor. He was very reassuring and although he had a meeting to attend that morning, he came to us first before going to his office.
He started Star Pals to help children with life-limit illness and special needs. You can read the article about him HERE.
Lord thank you for connecting us to Star Pals and thank you for blessing Jonathan with continued good health.