Wednesday, January 14, 2015

MY NEW MACHINE - MUG PRINTER

I acquired a new machine last year.  It's a mug press!  Something that Ihave always wanted for a long time.

So if you or your friends would love to have a personalized mug like this (picture below):


Just before Christmas, H's friend decided to print personalized mugs for his staff of only 8.  I thought it was a great idea!  So if you have any staff under your department, you can consider as gifts.  Don't have to wait till Christmas!



Do send me an EMAIL.  Price per printed mug is $15.  Comes with a box too.  If you order more, then price will be lesser.  Just let me know quantity. All designs can be full color.

Hope to hear from you!

God bless!

JONATHAN NEEDS A NEW WHEELCHAIR BUGGY

I'm trying to prolong Jonathan's current Convaid buggy. But after seeing this photo (below) again and again, it's really time to get a new one.






This is the 14inch cruiser we bought a few years back. I think Jonathan started growing taller in 2014. A sudden surge in height.

The only drawback about getting a bigger cruiser (16 inch) is that it may be too big for the taxi car boot.  I met a friend today and she told me that the day care her son goes to, has some kids who are already using the 16 inch buggy and most of them don't go out anymore because the buggy is big and can't fit into the car boot.

We're still debating. There are other buggies to reconsider, like the Metro. But this is a buggy with canvas mesh seat and I don't know how long it will last.

So...current buggy is getting small and the big buggy also must consider. But it is inevitable that we have to get the bigger buggy soon.

Anyone out there willing to buy us a MPV/SUV/van so that we can wheel the whole buggy into the vehicle and not take taxi as carrying him in and out of the cab is becoming difficult.

God bless!


Tuesday, January 06, 2015

HAPPY 2015!

We ushered in 2015 quietly with a prayer.  It's been a long 2014, although time passed quickly.  But we saw a progressively stronger Jonathan.

I thank God for seeing us through and for giving us grace and strength to shoulder on.  So looking forward to 2015 as the message was The Year of His Restoration.


Lets look forward to many great things and I wish everyone who visits and reads my journal, a blessed 2015 filled with good health, joy, peace, strength and wealth!

Wednesday, November 19, 2014

SICKNESS AND STAR PAL

On November 3rd evening, Jonathan started showing signs of unwell again.  The vomiting started at lightly at 8pm.  At 9, we brought him to the GP and thought of giving him the jab.  But I remembered the last one he had (Maxilon or something) really made him hyper and he couldn't sleep properly.  So doctor said just stick to suppositories.

By 10pm, the vomting became worse.  And he continued through the whole night. On any other occasion when he is unwell, he would normally stop retching around 4am.  But that night on the 4th, he was still doing it right up to 7am.  Although not frequently but mostly on the hour or two. Vomit contents mostly dark brown.

We were contemplating to bring him to KK but suddenly remembered Star Pals and their after office hours on call. Spoke to the Doctor, who advised me to stop all feeds, even medication. He explained that Jonathan would not be dehydrated even without water for one night.

Doctor arrived within the half hour, checked Jonathan and decided to give him a jab. The injection worked and immediately the retching stopped.  I was told that the medicine for the jab was more to control the brain.  Previous injections at the GP were more for the intestines, to stop the tummy from churning.

Perhaps this is the reason why most of the time, even after receiving the jab from the GP, he would still be retching.  But I was glad that Jonathan finally stopped that morning.

And finally, both of us were able to have a good deep sleep for at least another hour.

Doctor further dispensed 2 other medication for Jonathan which we had to pick up from the local pharmacy.

Thank God for Star Pals!  We were just introduced to this program by Jonathan's neurologist who felt that this service will be beneficial for us.  And we only had one meeting with Nurse Serene.  I must say God really planned it all for us.

Dr Chong is a very gentle doctor.  He was very reassuring and although he had a meeting to attend that morning, he came to us first before going to his office.

He started Star Pals to help children with life-limit illness and special needs.  You can read the article about him HERE.

 Lord thank you for connecting us to Star Pals and thank you for blessing Jonathan with continued good health.

NEURO APPOINTMENT AND BUTTON CHANGE 23RD OCTOBER 2014

Thankfully Jonathan was willing to go to KK that morning on the 23rd of October. He didn't even protest. But I did tell him it was time for button change and he was alright with it. Normally it would be a struggle just to get him onto the buggy.

The waiting time for his appointment with the neurologist was almost 1.5 hours. The doctor said, "it was good to see Jonathan again after 1.5 years." Haha.

Review went well. We found out he is already 150cm tall. And that's almost my height! They will have to use a longer measuring tape in future haha.

After Neuro, we rushed down to surgery for the button change. I was happy that an experienced nurse was there. She always changes buttons at a fast and efficient manner. First thing she asked me was "Isn't he afraid?" Well...if he was he didn't show it. Our boy was as cool as a cucumber LOL. They know him by name and even after so many years they will still ask if he's nervous. I should have said I'm the nervous one haha.

I scooped him onto the bed, they got their things ready, applied lubricant around the stoma and then nurse said "sorry ah". The next thing I heard was a "pop" and a little grunt from Jonathan and done. All within 30 seconds. Very little bleeding. Thank God for that.

We fed him there. It was meal time and also in a way to test the button. Gave him panadol to ease any discomfort.

"Do you have any pain at the button area?", I asked.

He replied "no".

Thank you Lord everything went well. Till next year...

Monday, October 27, 2014

ONE PICTURE SAYS IT ALL

Jonathan loves to lie down next to me whenever I lay down on his mat.  His favourite position is to roll over to me, place his head on my lower back and uses my body as his pillow.

I've taken a few pictures of that position before but I cannot remember if I have ever posted it here.  Oh yes I did!  It is HERE :)

Anyway, it was one of those days and that day, he decided to hold my hand and when I stretched my arm, his had just continued to rest there.  So I decided to take a picture.

After I took this photo, while uploading it into Facebook, I realised the word GIFT was just above my arm. I was really surprise by it.  Yes....Jonathan's name means GRACIOUS GIFT OF GOD.  He is a gift, no matter what.

This picture says it all.  It was so nice :)

God bless!

REFLECTIONS OF MY BIRTHDAY 19 OCTOBER 2014

My special day started at 12 midnight on 19th. H placed his hand on my head and prayed a wonderful and nice prayer over me.

I'm grateful to my family. My love and my son. thank you for your unfailing love for me.
And so my day came and went and I'm reflective only now when the "day" has ended.
The first 20 years was of baby steps to youthful fun.

The next 7 years was of career, courtship and one step into marriage.
These past 21 years have been eventful...of married life, family life and back to trying to lead a life with passion.

Who would have thought that 48 years have passed by and I still think I'm the baby girl of my big happy family and a mother of a child with special needs, who laughs at my sometimes childishness, actually, most of the time.

I'm not shy to say I'm 48. Sometimes I look at others and i think "he/she is younger than me? and he/she is more mature than me!" hahaha. I'm thinking...I'm going to hit 50 in two years and I'm like....wake up kid!!! hahaha

I've seen life in birth, I've seen death occurred, I've seen mid life crisis in others and I've seen happiness in most. Although one brings joy and the other brings sadness, there's not telling when or where good or bad will happen.

So at 48, I've asked for health, wealth, happiness and long life. At 48, I seek to still improve my skills, dare to challenge myself in things I don't actually do all the time; and at 48.....live life to the fullest no matter what.

Live a life...laugh in life...take pleasure in life. Don't be nasty...don't fret...don't criticize. Most of all, I try not to let the downs make me go downer, if there is such a word. But I shall let the downs bring me up, because the word "down", when read upside-down, starts with a U and ends with a P.

UmoP.

Easy to write and say but sometimes hard to achieve. Still I can tell you....it's such a pleasure and elated feeling when you are able to do it. And I'm proud to say I have achieved some.
I moan and I groan when things don't go my way. Still acting like a big fat kid. I've got a long way to go in this area hahaha.

So at 48, a BIG AND HUGE thank you all my wonderful family and my dearest friends near and far. For all your best wishes of blessings and love and gifts. It's so nice to have a birthday and it's so nice to know that you are loved again and again every year.

And I'll always be reminded:

F or I have watched over you.
O ver all the years you have lived.
R edeemed by My Son's death at the cross.
T otally saved and given unmerited grace.
Y ou shall be blessed for I AM your blesser.
E ven though the valley is hard to travel,
I will never leave you nor forsake you.
G ood will turn out from the bad that you have experienced
H ope will become real.
T ake heart....because I will be there for you.

48.....

The next day, H bought me a cute little fan.  He said it will keep me cool while I work without turning on the air-con.  I love it!  USB plug and it's not too strong that gives me headache when blowing at my direction and yet, it does keep me cool.  It oscillates as well which is good.  Thanks dear!





Then my good friend and Unnie, Olive, gave me a nice paper bag with beautiful ribbons.  She knows I love ribbons and when she was in Vietnam, she bought these for me.  Thanks unnie! Too nice to use them! hahaha


Love to all and God bless everyone for reading this post of my journal :)