Thursday, November 07, 2013

ANOTHER WAY OF COMMUNICATION

An ideal way for Jonathan to communicate with us is through assist technology.  But knowing Jonathan, that way is a slow way haha.

What we usually do is ask him the appropriate questions and he will answer "yes" or "no".

Sometimes, I tend to be lazy.  Actually more of I-don't-feel-like-talking kind of mood.  So I sign to Jonathan.  I spell out the whole sentence using the sign language alphabets and it always amuses him.

So here's a clip of our communication just last week.  Enjoy :)

video


Thanks for visiting and God bless your day!

HE WANTS HIS FEET FREE

There are a couple of reasons why Jonathan will kick off his sandal whenever he's sitting on the home chair.

1)  He doesn't like the shoe feel while at home.
2)  He wants my attention so he just removes them so that I will come to him.

Most of the time, it's point number 2.

So here he is, wanting me to change a video clip and I kept telling him to "hold on" as I was doing something at that time.  When he was about to "peel" of the other sandal, I gave him a warning and he stopped and crossed his leg instead.

I put the sandals on because the foot rest is made of metal and in his excitement and involuntary movements, he will kick his leg against the foot rest.

Here's a short video....

video


Thanks for visiting and God bless!

Friday, November 01, 2013

HE HAS GROWN

We recently had to buy a new seat cushion cover for Jonathan's Cruiser.  Price was $480 and included installation.

After the change, the buggy seemed to be a little more upright and that made his head stick out a little bit and soon we have to start using the head extension.

I do admit...our boy has grown so much taller.


I'VE BEEN QUIET....

Wow...I just realised the last I entered a journal here was in July.

Sorry for being absent.  I've been really busy with many things.

2nd August 2013...was a night that I would remember for a long time. An incident that woke my sense up about hygiene for Jonathan.

He woke up that night at 1am, unable to sleep and very jerky and fidgety.  I thought he was hungry.  So upon asking, he said yes to a feed.  While feeding, he just had so much movements that I kept telling him to calm down.  After feeding, I decided to change his diaper.  Only to find the front part of the diaper in dark brown color and there was a little trace of blood on his private part.

It was around 1.30am. The first thought was "he had urinary tract infection".  Initially H was wondering if we could give him panadol and wait till morning.  But my heart was already pounding.

As a woman, I know what it's like to pee blood.  I had UTI before and it's not pleasant.  The pain is excruciating and I know Jonathan was in a lot of pain.

So off we went to KK A&E. Thankfully that night was rather quiet so we were attended to pretty quickly.  We arrived for initial check and he had a temperature of 38.5C.  Obviously his anxiety level was way high. The hardest part was to collect a urine sample.  He was so "active" at the hospital and took us pretty long for him to pee.

To cut the long story short, Jonathan didn't want to be admitted, which was advised by the consultant that night because he had just recovered from flu with a course of antibiotics.  So they were concern that why the UTI could happened even though he already finished that course of antibiotics.

So I requested for him to be discharged and to report back if his condition didn't improve.  The relieved boy's temperature immediately dropped.

A course of 14-day Sofilex antibiotics was given and thankfully it didn't cause any button blockage and diarrhoea.



Diaper change is now more than regular.  Used to let it sit till it's full.  But now, I've decided to change it every 1.5 hours even though it feels like it's only partially full.  Hygiene is more important for him.  Don't want him to go through that again.

We were supposed to go for the review but I ended up going alone which is not allowed.  But thankfully the doctor was kind enough to see and advised that even though the bacteria was killed by the antibiotics, we should still bring him for a urine test.  That which we will do at the GP.

Thank you Lord for taking care of Jonathan.

Thanks for reading :)

Friday, July 26, 2013

DROOLING CAME BACK - AFTER CONSUMING JB MILK

Well...after the drooling stopped, I decided to try the milk we bought from JB again,  First  2 days was ok.  Then slowly the drooling started, escalating each day I continued.  To the effect that even when he was sitting on his buggy, he was struggling with the excessive saliva in his mouth and he kept having this gagging sensation.

I'm just thinking it's odd for this to happen.  So we finally stopped and of course, the drooling did stop too.

So back to our locally purchased Isomil Advance Eye Q Plus 3. I'm still not comfortable switching to cow milk yet as recommended by KK dietitian.

I don't understand why does milk cost cost so much.  This milk per 900g tin cost almost $48!  Well...ten cents short of $48. To get them from the chinese medical shop they do reduce it to $45.50.

If anyone knows of anyone who is working in Abbot or Zuellig Pharma, please let me know.  I need to buy a carton every month for Jonathan's milk consumption.

Thanks!!

Thursday, July 25, 2013

STARTING PHYSIO THERAPY

Today we brought Jonathan to the Society for the Physically Disabled (Tampines Branch) for assessment. I was a little  uncomfortable at first because the Indian OT sat there looking at Jonathan for a while and I was thinking "hmmm what is he thinking about".  He was so quiet!  haha.  We'll see what results they have about Jonathan. 

So after everything was over, including asking questions about Jonathan, we have arranged to have therapy every Wednesday, once a week for the time being.

Jonathan said he didn't mind the place. Me too.  It's quiet and nice and not a lot of people.  And most of all, it's at Tampines.

We will start therapy next week at 9.15am!  It's been a while since we get up so early, although on certain days, Jonathan does get up at 8am.  I have to be the disciplined one haha!

We are going to try once a week first.  Therapy session is I think 45 minutes at $54/session.  I have not started applying for subsidy yet because I'm not sure if Jonathan will be able to take PT.  They recommended 2 times/week, ie, one session PT and the other OT.  But I'm gearing more towards PT and maybe will just request for this.

Looking forward to letting Jonathan have proper physio therapy although we discussed that maybe I can do simple stretching and exercises at home.  But the thing is I'm not strong enough to handle Jonathan and the facilities at SPD will be good for him.  So we finally agreed that giving Jonathan an extra activity apart from being at home or taking short walks downstairs would be a good change.

I'm praying that the motion sickness will not affect him at all.

Hoping....

Thanks for visiting and God bless!

Saturday, July 13, 2013

MILK ISSUES - SOLVED (HOPEFULLY)

Just recently, I have started trying milk powder for Jonathan from Malaysia.  Not alot because we are not allowed to buy many across the causeway.  But the price is certainly much cheaper.

But last week, after consuming one can, Jonathan started salivating alot.  And I mean really alot.  Small puddles drooling out from his mouth and when he rubs his face on the mat, his face will be wet with saliva.

I don't know if it was the milk so we stopped it immediately and got him started on the Isomil from Singapore.

Two days ago, I called Abbott Singapore to check on the ingredients on the Isomil Advance Eye Q Plus.  The nutritionist said that there is no difference between those imported to Malaysia and Singapore.  The ingredients and nutrition contents are the same. The only thing is all health regulations are different between each country.  So for Singapore that follows AVA's guidelines, the calcium content in this milk may be slightly higher than those of Malaysia.

So after laying off Malaysia milk for one week, I put him back on again today.  So far, after 2 feeds, everything seems fine.

Perhaps that can of milk before this was faulty, I do not know.  Maybe Jonathan could have taken something that cause this mass salivation instead.

Hopefully all will turn out good.

And for talking to the nutritionist for his advice, yesterday I received three $5 voucher for the Isomil Advance Eye Q plus.  That was super nice of him to do that.  Yesterday already used one heh heh

Thank you Lord for this blessing :)